Wow it has been a long time since we updated this blog...There is so much to tell it is hard to know where to begin... I guess I will start w/the medical side of things...Since our last update Roma had a sleep study done in May (when he had his hearing test at the end of March is was apparent that he had sleep apnea) which revealed that he has Central Sleep Apnea--which means that his brain sends a signal to his body telling it to stop breathing. Roman's brain sent that signal some 400 times in one night! In light of that the docs wanted to do some more testing to see if he had a rare brain malformation causing this condition (repairable through brain surgery)...an MRI in June revealed that he did NOT have this condition, which means that the type of sleep apnea that Roman has is not curable and could potentially be life-threatening. In early July he started on a bi-pap apnea machine w/oxygen. Initially he didn't like it a whole lot but he has adjusted beautifully and doesn't seem to mind sleeping w/the mask.
During all of this testing, etc. we put our house up for sale--yes, we are a little crazy! :) And, it sold in just 3 weeks!!! Amazing! Then just 5 days after the last day of scho
ol we headed to Disney w/Jim's family. And, yes, we drove the whole 18 hours in our big van w/the 6 kids!! It was an adventure we will not soon forget. :) The kids had a ball in Disney and Roma was absolutely in love w/Mickey Mouse...he couldn't get enough of him. Nicholas wasn't too sure about all the characters, but by the end of the week he was looking for them all. The rides were great and the time spent w/family was priceless...Just 3 days after we returned from Disney we moved! It was a crazy time...but we are all settled now.
ol we headed to Disney w/Jim's family. And, yes, we drove the whole 18 hours in our big van w/the 6 kids!! It was an adventure we will not soon forget. :) The kids had a ball in Disney and Roma was absolutely in love w/Mickey Mouse...he couldn't get enough of him. Nicholas wasn't too sure about all the characters, but by the end of the week he was looking for them all. The rides were great and the time spent w/family was priceless...Just 3 days after we returned from Disney we moved! It was a crazy time...but we are all settled now.In July we took several beach trips and we loved watching Roma's reaction to the surf...initially he was nervous but he was soon over that fear and he tried to get in the water every chance he could. :) He really enjoyed the ocean...playing in the sand was a bit tricky for him but he is so clever and so creative...he would dig w/his feet or put the shovel b/w his toes to dig.
After our Disney trip Roman had mastered the pool. We bought him a special vest for the pool and he was raring to go...he LOVES the pool. Jim has taught him how to do flip (w/a little help) into the pool...he readily dives off the diving board and loves just swimming around w/his sisters.
August was a great month--Roman turned 7 on August 6th! It was a great day...all day long we kept telling him "happy birthday". The first few times he looked a little puzzled but after a while he acted as though he knew something special was happening. When we actually sang the birthday song to him he was grinning from ear to ear! It was too cute...he r
eacted to every gift he opened and he was so happy. It was hard to hold back the tears as we watched him that night...our minds kept going back to the previous 6 birthdays and it was sad to know that his birthday was never celebrated before this year! His life is so precious to us and he is such a joy and blessing...what a year is ahead of him. :) So much to celebrate...
August also brought the start of school once again...Roman, Megan, Lauren and Georgia are all at the same
school now, which is so nice. The girls actually ride the special needs bus w/Roman (they love it) and he loves having them on his bus. He is doing really well and seems to be enjoying school...
eacted to every gift he opened and he was so happy. It was hard to hold back the tears as we watched him that night...our minds kept going back to the previous 6 birthdays and it was sad to know that his birthday was never celebrated before this year! His life is so precious to us and he is such a joy and blessing...what a year is ahead of him. :) So much to celebrate...August also brought the start of school once again...Roman, Megan, Lauren and Georgia are all at the same
school now, which is so nice. The girls actually ride the special needs bus w/Roman (they love it) and he loves having them on his bus. He is doing really well and seems to be enjoying school... Georgia and Roman are both in the first grade this year and the first grade teachers decided to allow Roman to be integrated into Georgia's classroom for math, science, social studies, art, music and P.E. We didn't ask for this and weren't sure how Georgia would feel about having Roman in her room several days a week--she was so excited! :) They are loving getting to see each other during the day...Georgia is like a little mommy to him...when he comes in with the other students she makes room for him at her desk and watches after him as only she could. She looks for him at recess and doesn't like it when his alone so she finds him and they play at recess together. Her teachers have commented that there is a very special bond between the two of them--very special since she prayed for him fervently for 2 years!
Kaitlyn is now in 7th grade and doing great...and Nicholas is at home w/me. It is quite quiet around here w/out all the kids running crazy...but it is good for Nicholas to have some nice "Mommy time". He is doing well and we are trying to potty train him...he has mastered "Number One" but "Number Two" seems to elude us! ha..ha...ha...
Hopefully we will be able to update more regularly now that things have quieted down some...we'll see! :)
For all the Weaver crew...
~Karen
1 comment:
Thank you for the update! I check every so often to see how Roman is doing.Cara
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